Wednesday, May 05, 2004

05/05/04
As scheduled we went to the U of Ia for a neurosurgeon consult. On the way the Super Nurse remarked that surgeons always want to do surgery, so don’t be surprised if he recommends surgery instead of the gamma knife.

We talked to a Nurse Practitioner first. She outlined all three possibilities- gamma knife, radio therapy, conventional surgery. Then the neurosurgeon came in. Like the fellows at Mayo he said they don’t like to repeat conventional surgery due to the scar tissue. Then he said the gamma knife probably wouldn’t work because the tumor has moved the nerve and it would be hard to impossible to pinpoint. So he recommended radio therapy.

I don’t know how that procedure gets its name but would mean inserting a needle through my cheekbone where the nerve comes out, and fishing around till he finds where it comes out of the brain. Once that is done he would go in with another needle and burn the nerve somehow. From what I’ve read, the procedure is agony under normal conditions. Normal being the nerve is where it normally is. Mine isn’t there. Considering the prospect of a lot of fishing to find it, and a lot of pain. I balked. And the Super Wife was right.

So the next step is to have a consult with the radiologist to see if he thinks he can find it on an MRI and if the gamma knife is an option or not.

Then it was home and then to the Awana awards banquet for the kids. We got there early, who’da thunk? I was groggy from the meds, so, ignoring etiquette, I rested my head on the table. Ms. Pikachu amused herself by putting her CD player’s headphones on me. She was amused because she was playing a ‘Grassroots’ CD she’d burned, and while it played I’d pump my foot and I’d rock to it even though I was tired. I like the ‘Grassroots’ and she does too. It's impossible to stay still while 'Temptation Eyes' or 'Sooner or Later' is playing. Maybe that's just me.

I was among the first at our long table to get my food, and by far the last to finish. There were no knives so the only way to eat the sloppy joe was to compress it so I wouldn’t have to open my mouth very wide, and could take small bites. I’m not complaining, I’m long used to it. There was also a fine selection of jello’s and cakes.

When we were in the food line Train Boy was wrestling around with Ms. Pikachu’s friend, Erin. She was a good head taller than him, and it wasn’t much of a contest. But they needed to burn some energy so I let it go on. Train Boy was clearly heard to say, “But I’m too cute to die.” Girls have been talking, and he’s been listening.

Then it was home, more medication and I fell asleep on the couch. Woke up, and here you go.
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Tuesday, May 04, 2004

05/04/04
The Holy Wife always has a radio on, and it’s always tuned to a Christian station. Every morning they run contests. Sometimes it’s a test of Bible knowledge, and sometimes you just have to be the right caller. The Holy Wife loves playing these games. She has won more than a few CD’s. This morning the winner was the third caller. The third caller was the Holy Wife.

I found out when she came running upstairs and, smiling from ear to ear, told me she’d won. That’s nice, what’d you win, a CD? No. Concert tickets? No. I give up. Tickets to the -Sonshine Christian Rock Festival in Wilmar, Minnesota! That’s nice. Yeah it’s four days long and we can go camping! Oh my God.


This is not a little Christian Festival, it’s 20, 000 people. That was not a typo. But camping? I’ve never gone camping in my life. Starting with three nights at a rock festival seems like a steep learning curve. Maybe we could stay at a hotel? “Oh, no, camping would be free, and the kids have always wanted to go camping.” Right there I knew my only way out of this was major illness or death. The Holy Wife/Thrifty Wife/Super Mom had made up her mind.

One more time, I have never gone camping in my life. I have never used a portable toilet. They look nasty so I’ve always avoided them. My bladder and bowels can get me through a day, but I don’t think I can wait three days.

On the other hand, it’s three days of funnel cakes and corn dogs, so there is an up side. Yes, I AM kidding. Sometimes I think God has a warped sense of humor though.

Later in the day the Super Wife mowed the front yard; I mowed the back. I didn’t even injure myself. I had on some grungy blue jeans to also paint a piece of trim on the house’s second floor. I climbed the ladder a bit apprehensively because I don’t like heights in the first place, and my medication can make me very dizzy too. When she saw me up there she insisted I get down since I could get dizzy and fall. It made perfectly good sense, so I got down and she climbed up. I was grateful she was willing to do it, but also a little unhappy for failing the masculinity thing. To compensate I held the ladder, kept an eye on her, and never has a ladder been held in more manly fashion.

After the kids got home and everybody ate we rode bikes to the library. That’s a good thing to do as a fitness ‘thing’ so I have no complaints. Except we were riding into the sun the whole way and it was so blinding I could have been run over before I knew what happened, and it was really too cool, we should have been wearing jackets, we could have caught our deaths.

What always floors me on bike rides is that I change gears all the time. If we’re going up hill I’ll downshift till the pedaling is easy, I have no shame about trying to save my lousy knees. The Super Wife has never changed gears. Never. She does everything in 7th gear. This may explain why she has better legs than I do. That, and she’s the one who carries Train Boy. Do not hoot. Do not howl. It’s not that I’m unwilling.

His carrier is one of those seats that is above the rear wheel. It won’t fit on my bike, which has a wide frame that won’t accept it. Even if it did it wouldn’t matter. The Super Mom often biked with the kids before I would get home from work. She needed the carrier regardless. Never shifts with a six year-old on the back- Burly Mom.







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Monday, May 03, 2004

05/03/04
Slept in late. No, I don?t feel guilty.

Tried to have a bowl of Wheaties with bananas for lunch. Yes, I got up REALLY late. Unfortunately I could not eat the Wheaties. The crunching would start facial pain. Sure, I could let them sit there till they were soggy and eat them, but I don?t want soggy Wheaties, I?ve got my limits. The wife took them away and brought me tomato soup and a straw. You haven?t lived till you?ve done that. Whoopee.

It wasn?t long before we walked to Ms. Pikachu?s school to walk her home. A friend of her?s, Erin, walked along. While I got in some needed nap time on the couch the three of them made banana bread. The Super Wife believes all kids need to know how to make banana bread so they have a way of using old bananas. It?s her belief, and since the kids didn?t argue about it, okay.

Then it was another hour and I met Train Boy?s bus and walked him up to the porch. Train Boy reminded the Super Mom that they?d agreed this was a ?No TV? day. Super Mom had forgotten. Super Mom would have watched TV, in flagrant violation of the rule, except the cable was out. She?d called the cable company and they basically said, ?yeah, we know, we?re working on it.? So there had not been, nor would there be, any TV watching and the contract would be honored by all parties.

While the banana bread baked in the oven, Ms. Pikachu brought her Nintendo downstairs and plugged it into the living room TV. You?d think she would have been content to quietly play it in her own room, but no, she?s playing it in the living room where it can?t be missed. ?Hey, no TV.? ?I?m not watching TV, I?m playing a video game.? She could have a fine future as a lawyer.

While she played, Train Boy and Super Mom made bread in the bread machine. Nobody in our house is on the Atkins diet.

When the bread machine was properly set we went to see the local zoo, such as it were. It?s a small zoo- basically a petting zoo of farm animals except you?re not allowed to pet or feed them. They used to have a monkey house, and they spent $50,000 to improve it. Then they closed it. Do not ask me why. All I can say is they probably weren?t spending their own money. The next thing I?d say is, ?Are you sure you want bigger government??

We walked a little farther down to look at the ducks, which you also are not allowed to feed. Then the wife and kids decided to head up a rough looking trail. No way was I going to risk aggravating the face with a lot of jarring. So I headed back to the van. As I walked past the dirt prairie dog lot I couldn?t help but notice it was the one animal area that didn?t have a ?DO NOT FEED THE ANIMALS? sign. Damn me for legalistic tendencies, but I ripped up some dandelions, balled them up so they could carry over the screen, looked around to be sure there were no witnesses, and tossed them in.

They were excited. You almost hear them chattering, ?Oh yeah, not just looking, not just smelling it, we?ve got some greens!? They seemed happy anyway. Watching the prairie dogs eat the greens I couldn?t help notice how similar they are to the guinea pigs.

Then I walked the rest of the way to the van, put the seat back, and got some sorely needed rest. I?m kidding about it being sorely needed, but the pills do make me tired.

When we got home we had fresh-baked bread and?. soup. At least it was vegetable and there was no way to eat it with a straw.

Gotta close, the head is getting dizzy.

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Sunday, May 02, 2004

05/02/04
Being Sunday there was church, of course. To amuse her parents, during the service Ms. Pikachu draws pictures of Pokemon on the church bulletin. It is with no parental prejudice when I say she’s really good. No doubt about it, she’s artistically gifted.

Lunch was Hy-Vee again. Ms. Pikachu laughed as she named the things she was sure I’d have. Just to do something different I did not have the meatloaf, I had the ham balls. Sometimes you want to a little excitement in your life. Sometimes you just want to be different and devil-may-care. Let me assure you, if you want “different” and “exciting” ham balls are not the way to go about it. The next time we eat there I will be having the comfortable meatloaf.

You may be wondering, "Did she get a Palm Pilot, or not?" Ms. Pikachu remembered I'd bought her a similar device about a year ago- a V-Tech Phusion. So she got it out of wherever it was she'd stored it, and it works just fine. Not only can she store memos, do scheduling, and calendar entries, but it also has a half-dozen games and a camera for BW pictures on the top.

She was so excited about it, it was like it was new. I'd just bought it too early. We spent lunch playing trivia games, and she and Train Boy took pictures, some of them in 'movie mode.' In movie mode it takes a picture about every three seconds. The pictures are crude, but the kids love them.

Everybody else had their usual Chinese. Train Boy ate a fortune cookie without removing the fortune. He asked the Super Mom if he'd just poop it out. She told him that yes, he could, but if he does the fortune wouldn't come true. Gotta love her.

The rest of the day was fairly wasted. It was doing laundry, and when not folding clothes I watched the History Channel. I should have spent time with the kids. They’re growing so fast and the minutes I can have with them are vanishing as inexorably as a clock’s tick.

The kids were so funny at Hy-Vee it was just screams, but in not getting it down right away I’ve quite forgotten how the conversations went. Normally that wouldn’t be a problem, it may be a side-effect of taking increased levels of nervous depressants. It's just lost. Argh.

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Whine at me: publicserf@yahoo.com
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